As we sailed in to 2010 getting used to our new neighborhood and surroundings, things were getting interesting. Joe was finishing up another season with the PLFlyers and it went pretty well. Jimmy Watson was able to move Joe onto a new level and a new perspective. We would move on to a different path. Nick was cruising around with his drivers permit and getting ready to fly. Business was kind of boring actually while sales were few but buying scrap held center stage. It was business either way and earnings were steady. I was actually beginning a search online for the area that I thought would be the best for a future retirement/ investment property to buy within the year. It was a Zillow quest, hovering over neighborhoods on Google Earth and trying to nail down the perfect spot in Florida. East or West coast? The best view. On a golf course, With a pond view, near the beaches, quiet development, perfect location. No problem…would take me at least a year. I felt good though. The bills were getting paid, my staff were happy, we weren’t killing ourselves and my health was great. Hallelujah!
“You’ve got Mail”… was the response by my computer when I turned it on. My AOL was jumping. Like 50 emails waiting to sift through. One by one, I scanned down the list and there it was. The header was short but hit me like a ton of bricks. Dr. Druker/Jeff Keenan /CML Request. I took a few seconds to open it but I can’t lie, I was pretty anxious to find out what the esteemed creator of Gleevec and lifesaver of so many wanted with me. The email began with the usual pleasantries, ” Dear Jeff, hope you are well”. ” It has been 10 years since you started taking Gleevec with minimal issues. We know about your gastric issues and your fatigue, etc. Your PCR results are right on course and blood work almost perfect although your Hemoglobin remains low. Besides all of these findings my outcome was moving on positively and hopefully towards a curable situation once and for all”.The email continued….
“The Portland Oregon Center for Health Sciences and treatment of Cancer” is embarking on a study on Leukemia and the after effects of longterm Gleevec usage. The study would follow long time gleevec molecularly negative survivors who had been PCR negative for at least 5 years. Those patients who were selected would be able to stop taking their medication for as long as forever if weekly blood testing would prove that a lasting remission proved to be Leukemia free! Wouldn’t that be amazing! It was our choice to opt in or out as the patient eligible for the study. I jumped right in!
Blood testing would be done weekly as well as a bone marrow aspiration every month for six months. Our beginning marker was full 5 log remission. No sign of the protein that causes CML. Cold Turkey. No more Gleevec for at least 6 months. Dr. Druker encouraged me to speak with Dr. Dave and discuss the plusses and minuses of the study. The caveat was that any upward change towards positivity in the Leukemia markers, I would immediately be put back on Gleevec. Immediately!
OK DR. DRUKER WHEN DO WE START! Dr. Dave was all in, as well as my family. If I could become independent of this Chemo drug forever it would be amazing! We would begin the study in April and every week thereafter, a trip to Dr. Dave’s office for bloodwork for at least six months. Well, here goes nothing! Bye, bye, Brown Pill. I won’t miss you, but I could have never lived without you.
Next Up: Five Months…